The daily damage being done by the Trump administration has given rise to a grim debate: how much of the wreckage can be remedied, or at least ameliorated, and how much is irremediable? How many of the attacks on purportedly “wasteful” and/or “fraudulent” expenditures are really based upon the appalling ignorance of those leveling the attacks–their profound lack of understanding of how things work?
Example: The sudden and draconian cuts to scientific and medical research don’t just threaten to cripple US global research prominence. They’ve thrown a wrench into promising research into cures for diseases like Alzheimers, Parkinson’s and Cancer.
Last week, the news media reported on two breakthroughs: the use of advances in gene editing to cure a baby born with a rare genetic disorder; and a new blood test to detect Alzheimers. The exciting aspect of the technique used to cure the 9½-month-old baby is its potential to help people suffering with thousands of other uncommon genetic diseases. The blood test makes it possible to detect Alzheimer’s disease much earlier. As one doctor pointed out, the test will allow primary care physicians to order a blood test and, if that test is positive, immediately refer a patient to a neurologist. He predicted that the test will “dramatically change clinical care.”
These advances and others like them didn’t emerge from a few weeks experiments in a laboratory. They built on years of scientific research, much of which had no immediate relevance to the reported advancements.
Most Americans don’t recognize the importance of basic research–it simply isn’t salient to citizens the way cuts in Medicaid or attacks on Social Security are. And very few Americans understand the long-term and disastrous effects of abrupt terminations of multi-year grants.
As Josh Marshall has argued at Talking Points Memo,
Basic and applied research generates huge dividends for a society. But its immediate and salient relevance to the average voter varies greatly. Theoretical physics is very worth funding and has many real world applications. But its relevance to — and just as importantly, its political traction with — a middle income couple in your average community where he’s a bus driver and she’s a nurse may not be crystal clear. Yet everyone knows a family member or loved one or friend stricken with cancer, or conditions tied to aging and dementia, heart disease, or any number of other conditions against which medical science is making steady progress. The point is so obvious it barely merits arguing: People fear death and disease. They look to science for hope of cures and some promise of long and robust lives. For two or three generations, that hope has been tied to researchers, somewhere, perhaps operating with something akin to magic but consistently producing new and wonderful things….
The challenge is that the world of biomedical research is insular. It operates with a system of internal governance and mores that are broadly understandable to people who’ve been exposed to university life, especially in the sciences. But that’s a very, very rarified discourse — peer review, study sections, fundamental vs. applied research, pipelines of new researchers, etc. Let’s start with just the foundational point that almost no one has any fucking idea what any of those terms and concepts mean. And for most things, that’s fine. Society should be well-run and knowledgeable enough to keep its scientists and researchers funded so that they don’t need to focus on the song and dance of making the case for what they do in the public square. Unfortunately, that’s not the world we’re living in right now.
Researchers have an additional and under-ordinary-circumstances very understandable desire not to overpromise or give false hope. This is rooted both in ethical imperatives and the uncertainty-driven empiricism that is the hallmark of any good scientist. But at the moment, it is a big problem because it is providing an unmerited advantage to those who are using lies to shut down medical research in the U.S.
Marshall’s essay is worth reading in its entirety, but his essential point is that people with big megaphones–those in the various “disease communities”– should inform the general public about what is happening. Loudly. As he says, “The more widely known this becomes, the more salient it becomes, the worse it will get for those people who are pushing these cuts, or at least trying to make them permanent through the 2026 budget process.”
Trump and Musk gave carte blanche to know-it-all interns who have no comprehension of how science or government works. Millions of Americans will suffer unnecessarily as a result.
Welcome to MAGA (Morons Are Governing America) world.
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